Wednesday, July 29, 2009
When Kevin Roose's fellow students at Brown University started planning for semesters abroad, in places like France and Spain, he pitched an idea to his advisor for a semester in another foreign culture: the evangelical community at Liberty University. The result is the book, The Unlikely Disciple: A Sinner's Semester at America's Holiest University.
Read the entire review at Examiner.com.
On Friday, August 7, musician Jesse Sprinkle will be performing a benefit concert to raise funds for his trip to Uganda on August 12. Sprinkle has traveled to Uganda before to work with The Ugandan Water Project. Jesse Sprinkle has had a long career...
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Tuesday, July 21, 2009
That's because Dylan has Muscular Dystrophy. When he was born, doctors told his parents, my cousin Jenefer and her fiance Nick, that Dylan would probably not live through the week, and if he did he'd never open his eyes, move his limbs or breathe on his own.
That's the bad news.
The good news is that while he's still on a ventilator and feeding tube, the baby that doctors said would never live out his first week spent 10 minutes of his vent last week, breathing on his own. His eyes aren't just opened, he's looking around, waving his arms, sucking on a pacifier. Dylan is ready to go home.
And after three months, countless hours of training for his parents, and medical coverage that allows for 20 hours a day of nursing care, 7 days a week, Jen and Nick are ready for their son to come home.
Problem is, they can't get a home ventilator. Apparently all of the home medical equipment companies in Rochester either don't work with infants or don't have the right vent.
Adding to the story: Jen herself has Muscular Dystrophy. She has some problems lifting things, and so needs to make sure the ventilators they get are things she can handle while Nick is at work.
To say that Dylan's parents are frustrated is an understatement. Dylan's ready to go home. His parents are ready for him to come - they've undergone countless hours of training in everything from CPR to cleaning and changing his tubes, and have just two more classes to go. The nursing service has the schedules all ready lined up based on Dylan's original release date of July 28; if he doesn't go home, they will reschedule the nurses and they'll have to start over again when he does go home, which could hold up the process again.
So Jen is asking - pleading - with you for help.
She's not asking for money or a handout. What she needs is someone to intervene on their behalf to help get them the ventilators they need, as well as connect with a company right here in Rochester to service them so that Dylan can go home. The medical industry is complex and frustrating. When all of the companies in Rochester have said no, she doesn't really know what to do next.
If you can help, if you know anyone who can help Jen and Nick navigate the red tape of medical services, please let me know and I'll connect you to Jen.
Monday, July 20, 2009
I wish I had some of that adventurous spirit now ... by the way, that's me without the shirt. Naked and carefree. And freshly powdered.